Yesterday, besides being a red letter day for the country, was a big day in our lives as well …Elizabeth went up to CHOP to be injected with the radioactive iodine that her neuroblastoma, if it is there will suck up, and she will be scanned today for glowing. Having the election to focus on was something of a help because it distracted us from this. Mayzie was wonderful in offering to go up with Bo and Elizabeth and so she helped entertain Elizabeth while they waited for the IV’s etc. I was very relieved that she could do this. I had planned to go up with Boyd and Elizabeth but there is so much work I have to do this semester, that to have a day when I could just work in the office with no distractions meant that the rest of the month would go more smoothly. Having Mayzie go with them meant I felt less guilty and I think it made me more productive at work.
Today Boyd and Elizabeth go back up for the scan. Elizabeth will have to lie perfectly still while they take what is essentially a full body MRI. Often children are sedated for this, but Elizabeth has been lying flat and still for these tests since she was 2, so today should go reasonably well.
I was telling Boyd how sorry I was that he had to take her to get this done today and how sorry I was that Elizabeth was having to get this done, but Boyd pointed out that we are really very fortunate and that things could be so much worse….and I know that he is right, truly things could be so very much worse and I need to be very grateful, everyday.
We will post when we get results. Peace
I am so glad I was able to help. Elizabeth was a champ…as brave as I would have been. What a long, rough road this fight has been. We are waiting and hoping for good results.
Indeed, this is The Day After an Historic Day for the US. I made it back to Bowie in time to vote…and because it was raining, there were no other people there at 4:45pm (when I had tried to vote at 7:00am opening, there were at least 150 people in line). And E1 was in good spirits. YES WE CAN!
All the love to Elizabeth Lee and all her family.
Maysie
By: Maysie on November 5, 2008
at 5:52 pm
We certainly are thinking of you and waiting for good, good news. We love you all so much, and are starting our Thanksgiving now, even though our gratitude keeps us humble everyday…
Diane and Jill
By: cacopema on November 5, 2008
at 10:41 pm
We are praying for your family today and sending all our love.
By: Aunt Martee on November 6, 2008
at 10:28 am
Our prayers are with you all. MIBG = May It Be Gone!
All best & God bless,
Amy, Rick, ^^Arden^^ & Grayson
By: Amy Bucher on November 6, 2008
at 2:38 pm
Now you know you must be pretty important when I’m checking your site from Disneyworld nonetheless! Post those good results… they should have them by now!!!
By: Keren Fitzgerald on November 9, 2008
at 1:37 am
I just read my own response…geeze…what I MEANT to say was that Elizabeth was MORE brave than I would have been. She is really something. I am so proud to be her and Katie’s grandmother.
By: Maysie on November 11, 2008
at 9:36 pm
Okay, we’re back from Disney and still no results have been posted…?? Please say all is okay!!
By: Keren Fitzgerald on November 12, 2008
at 8:36 pm