First the important stuff, Elizabeth had a bone marrow biopsy and MIBG scan last Last Thursday and Friday and we just got the word that they were both clear! no evidence of disease. Now that that is out of the way, sorry for the long hiatus. We have been operating on the “no news is good news” principle. Plus I apparently have forgotten how to use wordpress. I wrote a posting three days ago and thought I published it only to log on tonight and be unable to find it anywhere. Part of that missing post was a thank you to Amy and Rick for putting together the gathering last Friday. It was good to see all of you, especially that cute young chick I was sitting next to, who ever she was! You are all in our hearts. Elizabeth is back in typical 4 yr old mode which is absolutely fabulous! The only trauma in her life, other than having her friends play with her “special” toys is getting her immunization shots redone. The marrow transplant wiped immunity imparted by the infant shots. These shots are, for her, the worst thing that has happened in the entire course of treatment. Month in the hospital with no immune system, throwing up the bloody remains of her GI track, no problem…dip-tet shot, you would thing they were amputating her arm without even giving her a stick to bite on. She still loves to go to the hospital but is terrified of her pediatrician! We will see Dr Grupp some time in the not too distant future and map out the next tests etc. Until then.
Love the stick to bite on…I once broke the seat in my mom’s Mustang, kicking it in a pure tantrum after getting a TB skin test. Hey, in all fairness? I was told no shots that day…hmph!
Thrilled, and awed, at the scans being clear! Go Elizabeth, go!! We love you! Diane and Jill
By: cacopema on March 7, 2009
at 4:44 am
This is wonderful news! Love to all. Martee
By: Aunt Martee on March 8, 2009
at 4:37 pm
Papa Linn and I are so happy about Elizabeth’s scan. We loved the Sat. visit and are so proud to be grandparents of Elizabeth and Katie.
By: Maysie on March 8, 2009
at 7:36 pm
I’m so happy the scans are clear. Elizabeth seems to be enjoying herself, except the shots of course. I’m glad things are great right now!
By: Katie Trent on March 10, 2009
at 4:58 pm
Was I that cute young chick??? I sure hope so!!
So relieved that all your news was good news!
By: Keren Fitzgerald on March 17, 2009
at 12:42 pm
Great news about her scans! I love hearing from Nancy about Elizabeth’s experiences in her preschool. Glad to see her Irish jig on St. Pat’s day!
By: Ann Luquette on March 21, 2009
at 12:37 pm
Fantastic, fantastic! So happy to read this wonderful news!
Best,
The Buchers
By: Amy Bucher on March 24, 2009
at 5:20 pm
I hadn’t visited Elizabeth’s blog in quite awhile, but I am thrilled to find this fantastic news! This is just wonderful for your entire family. Elizabeth is getting to experience a typical childhood once again, pediatrician/shot anxiety included! Blessings to your whole family!
By: Meighan on March 27, 2009
at 7:11 pm
I am glad to hear that the scans are clear. That is awesome news.
I wish that there was a way to subscribe to updates.
Sending hugs.
By: Dan Cohen on March 29, 2009
at 9:45 pm
hoping things are going well always in our thoughts and prays. Jane and Bud
By: jane hurlock on April 4, 2009
at 3:51 pm
I am so happy she is doing well!!!
By: Julie on April 20, 2009
at 9:03 pm
What good news to read on her birthday eve — just checking in as I was reminded it was coming up! See you all in July at the crabfest, I hope!
xoxo
Alison and the May boys three
By: The CA Mays on April 21, 2009
at 4:09 am
Hello,
I know that I have not written in a while, but I do think about and pray for Princess Elizabeth and all of you all the time.
Dan Cohen
By: Dan Cohen on April 30, 2009
at 11:59 pm
oh… and if I could take those shots myself for Elizabeth and it would help HER, I would do it for her a thousand times in a heartbeat.
Dan Cohen
North Miami Beach, FL
danco1968@hotmail.com
By: Dan Cohen on May 1, 2009
at 12:03 am
where are you? How’s our girl doing?
If you’re going to be a blogger now… blog more often!
Love ya!
Kerrie
By: Keren Fitzgerald on July 13, 2009
at 11:47 pm
Hello,
I just came by to check up on Her Majesty Princess Elizabeth.
Hugs,
Dan Cohen
danco1968@hotmail.com
By: Dan Cohen on July 17, 2009
at 10:24 pm